Frequently Asked Questions

What is this blog about?

This blog is a space for anyone living with chronic illness—or supporting someone who is. Here, I share stories, reflections, and practical tips about navigating life with conditions that don’t just “go away.” It’s not just about illness, though—it’s also about hope, joy, and finding ways to live fully, even on the hard days.

How can I get involved?
What topics do you cover?
How can I find support?
Who writes the blog?

I write about everything from daily challenges (like managing fatigue or brain fog) to bigger themes (like finding meaning, maintaining relationships, or adapting goals). You’ll also see posts about mental health, practical tips, and little joys that make the tough days easier.

Hi, that’s me 👋 I’m Velvet, and I live with Lupus, Sjogrens, and Rheumatoid arthritis. I started this blog because I know how lonely chronic illness can feel. Writing is my way of saying, “You’re not alone in this.”

You can join the conversation by leaving a comment, sharing your experiences, or reaching out with topic ideas. Your voice matters here. This blog feels more like a community when people open up, so please don’t hesitate to connect.

While this blog isn’t a substitute for medical or mental health advice, I share resources, coping strategies, and encouragement. You’ll also find a caring community in the comments section. If you’re looking for immediate support, I always recommend reaching out to a trusted healthcare provider or a support group (online or in your area).

Is this blog medical advice?

No—this blog is about lived experience, encouragement, and community. I always encourage you to lean on your healthcare providers for medical care.

Is it okay if I don’t have a diagnosis yet?

Absolutely. Chronic illness journeys don’t always come with clear answers, and you are welcome here no matter where you are in yours.

What if I’m having a really hard day?

Then this blog is especially for you. I want this space to feel like a soft landing place when things get heavy.

Can I share my story here?

Yes! Whether in the comments or by reaching out privately, your story matters. Sharing helps others feel less alone.

💌 Final Note

This blog exists because I believe no one should have to face chronic illness alone. Whether you’re here to read quietly, share your voice, or just take a breath, I’m so glad you’ve found this space. You belong here.

Gallery

A visual journey of hope and support.

A person is lying down on a soft, light-colored blanket, and another person is sitting beside them, holding and supporting their head. Both individuals are casually dressed in light, neutral-colored clothing. In the background, there is a vase with dried plants placed on the floor against a white wall.
A person is lying down on a soft, light-colored blanket, and another person is sitting beside them, holding and supporting their head. Both individuals are casually dressed in light, neutral-colored clothing. In the background, there is a vase with dried plants placed on the floor against a white wall.
Two individuals are in a hospital room. One person is lying in a hospital bed with medical equipment around, engaging with a tray of food. The other person is sitting in a chair, using a smartphone, dressed in comfortable clothing.
Two individuals are in a hospital room. One person is lying in a hospital bed with medical equipment around, engaging with a tray of food. The other person is sitting in a chair, using a smartphone, dressed in comfortable clothing.
A man sitting in a green chair holding a camera
A man sitting in a green chair holding a camera
A person with long blonde hair is in a standing-sit position supported by a chair. They are wearing a brown long-sleeve top, black high-waisted pants, and white sneakers. The chair is metallic with a patterned cushion. The floor is covered with blue tiles, and the background wall is plain and light-colored.
A person with long blonde hair is in a standing-sit position supported by a chair. They are wearing a brown long-sleeve top, black high-waisted pants, and white sneakers. The chair is metallic with a patterned cushion. The floor is covered with blue tiles, and the background wall is plain and light-colored.
A healthcare professional is assisting a patient in a clinical setting. The patient is sitting on a chair, holding a cup near her mouth. The healthcare worker is wearing gloves and a protective gown, attending to the patient with what appears to be a medical procedure or care routine.
A healthcare professional is assisting a patient in a clinical setting. The patient is sitting on a chair, holding a cup near her mouth. The healthcare worker is wearing gloves and a protective gown, attending to the patient with what appears to be a medical procedure or care routine.